At Home Christian Jessen 2014 - 183

| REAL LIFE|

'I look well,
but I'm
in almost
constant
pain'

BONNIE'S CLOTHES: JACKET, JEANS, HEELS MODEL'S OWN,
TOP F&F AT TESCO, NECKLACE ACCESSORIZE

BONNIE MOTTLEY, 54, a life coach
from Hertfordshire, needs to go to
the toilet up to six times an hour

'When I was younger, my nickname
was "teabag bladder" as I always
seemed to need the toilet more than
anybody else. It was funny at first,
until a man I was out on a date with
asked how many more times I would
be needing to go to the toilet that
evening. I smiled broadly, but in
reality, I just wanted to break down
and cry - I found it so mortifying.
'There was also an embarrassing
incident once in a nightclub. After
queuing for the toilets for what felt
like ages, I was walking back out to
the bar area when I felt the sudden
urge to go again. Rather than queue
for a second time, I had to dash into
the gents. Over time, things got
worse, not only did my bladder
almost constantly feel full, but it
was also accompanied by a terrible
throbbing pain. Finally, in my
early 40s, I was diagnosed with
interstitial cystitis - the need to
use the loo frequently.'

Coping mechanisms

'A chronic inflammation of the
bladder wall, interstitial cystitis is
a bit like having "normal" cystitis
pretty much all the time. Unlike
cystitis, interstitial cystitis can't
be cleared up with a course of
antibiotics, and so the pain seems
relentless. These days, I have to use
the toilet - urgently - up to six times
an hour, and my sleep is broken as
I get up to five or six times a night,
meaning I'm usually exhausted

during the day. Leaving the house
requires military planning as it's
about knowing where the nearest
toilet is at all times. I don't drink
before going out. If I'm having a
bad day, I don't even leave the house.
'Because I look well, when I'm out
and about, people really struggle to
see why I should jump to the front of
the public toilet queue. So, to avoid
too much embarrassment I carry a
Radar key to access public disabled
toilets - just in case they're locked.'

Positive thinking

'Eating is also a problem because
I get bloated very quickly. Anything
acidic, such as apples, oranges and
red berries, seems to make things
worse. It's vital to have a support
network around you; luckily, my best
friends are very sympathetic.
'Nobody knows why my condition
happens, and currently there's no
cure. No drug treatment has ever
worked for me, either. Surgery can
be an option for some people, but
I'm reluctant to go down that route
in case it makes things worse.
'Despite this, I won't let my illness
dominate my life. I work part time
as a community psychiatric nurse
and a life coach, so it's vital to stay
positive and make the most of the
things I can do.'

DID YOU KNOW?

Statistics, symptoms and advice

* Interstitial cystitis affects around

400,000 people in the UK
* More than 90% of sufferers are
female, and a common time to be
diagnosed is around 40 years old
* Different sufferers can experience
different symptoms. Some can have
more pain with a full bladder and,
for some, the most pain is when
they're actually urinating. Their
bladder pain might be aching and
dull or stabbing and sharp
* There's no cure for interstitial
cystitis, but treatments including
painkillers and antidepressants
can help. Surgery can also be an
option. The condition can be so hard
to manage that it's common for
sufferers to only work part time, if
at all. For more information, contact
the Cystitis and Overactive Bladder
Foundation on 0121 702 0820
or www.cobfoundation.org >

www.athomemagazine.co.uk JULY 2014 | 183


http://www.cobfoundation.org http://www.athomemagazine.co.uk

At Home Christian Jessen 2014

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